GSD Life

Glycogen Storage Disease

GSD Life is a social network




  • Add Videos
  • View All

Latest Activity

Tammy Tancinco is now a member of GSD Life
5 hours ago
veronica torres posted a discussion

sore mouth, ulcers on the tongue is just for type 1b???

hello everyone, my girl is 20 months old now, and she is been having problem with every tooth that comes out, and something she get ulcers on her tongue, we don't have a certain type but we think she is type 1A but I read that this problems happens more in type 1b .... please If you know a good mouth spray or something to help her let me know... thanks a lot
17 hours ago
Daisy Bueno is now a member of GSD Life
Brian Pawlik liked Ben Whitaker's blog post Help Keep the GSD Life Community Going and Donate Today!
Jun 13
Brian Pawlik replied to Jessica's discussion Beyond frustrated trying to find a doctor in the group GSD 1A
"I'd reach out to the Connecticut GSD team and ask which local doctors work well with them.  Coordination between your local PCP/Specialist and GSD Connecticut makes a world of difference!"
Jun 13
Sharon updated their profile
Jun 12
Sharon left a comment for moisei veronica
"Hi Moisei, How are you doing?  It's been awhile since I've been on this page."
Jun 12
Andrew O'Toole replied to Jessica's discussion Beyond frustrated trying to find a doctor in the group GSD 1A
"Hi Jessica. I live in Verona NJ and my General Practitioner. Goes on my advice and the Connecticut GSD teams advice, for prescription, extra blood work, ER visits etc. Mountainside Family Practice - (973) 746-7050 Is the office number. I will see…"
Jun 12


Continued glucose measure (CGM) systems?

Started by Dennis Seifarth. Last reply by tucker May 25. 9 Replies

Student Exchange

Started by Sofia Warzecha May 4. 0 Replies

questions about G-tube leaking and size ?

Started by Allen Sun. Last reply by Allen Sun Jan 24. 8 Replies

Glycosade in UK

Started by Eshan. Last reply by Rebecca Jan 11. 1 Reply


Member Map


  • Add Photos
  • View All


Google Docs


© 2017   Created by Ben Whitaker.   Powered by

Badges  |  Report an Issue  |  Terms of Service