GSD Life

Glycogen Storage Disease

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melissa fix commented on Meghan L.'s group 'GSD Type 6- Hers Disease'
yes maam..ill keep u updated i got to call the allgery doctor 2morrow..she already takes shots and stuff and i really dont want her to do surgery so hopefully we can get around that. keep fingers crossed!! sounds like we have some strong kids ya…
12 hours ago
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grimalda belliveau left a comment for Arlene
Hi arlene in a strange way it's comforting to know someone else who lives in Toronto suffers from this condition. I have three year old with gsd type 1a., we have yet to meet anyone with this condition.
14 hours ago
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Kim left a comment for Lisa Singer
Hi Lisa Theyhave tested ketones but im not sure what results were. During thr prolonged fast the nurse dipped his urine at 12 and 18 hours she said they were neg but usually there should be some in urine after fasting this long. I asked the doctor…
23 hours ago
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Lisa Singer left a comment for Kim
Kim, type 3's produce ketones to keep blood sugars normal for a prolonged period of time.  Its these ketones that is suspected to damage the liver.  You might ask the doctor if they tested for blood or urine ketones.
yesterday
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Kim left a comment for Michael
Hi michael Thanks for getting back to me. We also have Dr Stockler but she isnt sure and is referring us back to the gi specialists. We did the prolonged fast 2weeks ago and his sugars didnt go really low during the test so now she thinks it isnt…
yesterday
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Jessica commented on Kelly's group 'GSD Type III'
from what i have been reading, it is the hypoglycemia attacks. when the body needs the sugar the liver won't release it so as a defense it takes it from the muscles
yesterday
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Michael left a comment for Michael
Hi Kim, First, welcome to the site.  It's a great community to be a part of. My son is treated by the Biochemical Diseases Team at BC Childrens Hospital.  The director of the program is Dr. Stockler; very bright doctor. He was…
yesterday
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melissa fix and Ashley Kester (Paxton) are now friends yesterday

Forum

Adrianna

Continuous overnight Tolerex feeds??

Started by Adrianna. Last reply by Joseph A. Delano yesterday. 2 Replies

yasmeen mother of abdulla

g tube leaking

Started by yasmeen mother of abdulla. Last reply by Joseph A. Delano yesterday. 16 Replies

Lane Proeber

Troubleshooting for Gram Scale

Started by Lane Proeber. Last reply by Brian Pawlik yesterday. 7 Replies

Lane Proeber

Getting confuse on what Dr. W expects compared to my local doctor. Please help!

Started by Lane Proeber. Last reply by Lisa Singer on Friday. 14 Replies

Amy Marshall

Ketones

Started by Amy Marshall. Last reply by Jillian on Thursday. 4 Replies

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Brian Pawlik

Sugars in the National Nutrient Database

Posted by Brian Pawlik on January 23, 2012 at 2:48pm 1 Comment

Cynthia Pichardo

AGSD Conference 2012...

Posted by Cynthia Pichardo on January 11, 2012 at 4:31pm 4 Comments

tom smith

GSD type 3a After Childhood.

Posted by tom smith on January 11, 2012 at 1:47pm 2 Comments

maha ali

frequent urination

Posted by maha ali on January 8, 2012 at 3:23am 10 Comments

Tabitha Hopkins

Medical ID Bracelets

Posted by Tabitha Hopkins on December 29, 2011 at 5:21pm 3 Comments

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